Hear From Patients & Care Partners
Hear people living with DM and their care partners share their stories.
Featured Videos
Suzanne's complete story
Advice for care partners
Life hacks: slow down
Feeling isolated with DM
Diagnosis & Discovery
Explore stories of how patients first noticed symptoms, navigated misdiagnoses, and ultimately found answers through persistence and expert care.
A rapid onset of muscle weakness led to a quick diagnosis
Dermatomyositis symptoms post-pregnancy
The long road to diagnosis
Living with Dermatomyositis
Hear how individuals manage everyday life with DM—from career changes and new hobbies to home care and navigating the healthcare system. These stories reveal practical life hacks, emotional resilience, and the creative ways people adapt routines to live fully with DM.
How DM has changed her practice of medicine and career
Being a nurse with DM
Life hacks: finding the right UPF clothing & prioritizing a healthy lifestyle
Mental Health & Resilience
Hear raw, heartfelt stories from patients and care partners about the emotional impact of dermatomyositis. Their voices reveal how therapy, creative expression and inner strength help people navigate living with DM.
Finding strength in support groups and true friends
When others don't see struggle
Balancing strength and vulnerability
How Dermatomyositis Affects the Body
Understand how DM affects different parts of the body and how symptoms evolve over time.
The rollercoaster of symptoms with DM
Muscle pain in trunk and midsection
Pain from calcium deposits in dermatomyositis
Advocating for Yourself & Others
Hear how patients and care partners speak up in medical settings, push for accurate diagnoses, and become powerful advocates in the DM community. These stories also highlight the importance of developing partnerships and support networks with physicians, family and friends.
Making clinicians aware of DM pain
Importance of sharing your story
How her children advocate for her DM
Complete Patient Stories
Hear extended interviews from people living with dermatomyositis as they walk through their entire story. These detailed accounts reveal the impact of DM on their lives and their resilience battling this disease.
Suzanne's complete story
Jen's complete story
Crystal's complete story
Care Partners - Supporting Loved Ones with Dermatomyositis
Stories from care partners navigating daily life, treatment, and emotional support for those living with DM.
Khaoula's Story
Philip’s Story
Chris’s Story
Care Partners - Honoring Loved Ones Lost to Dermatomyositis
Powerful reflections from care partners who continue to advocate, educate, and share their journey after loss.
Nori's full story
Who was Nori?
Nori's dermatomyositis journey
PeerConnect
Marilyn
Living with DM since 2007
Benita
Living with DM since 2020
Kaniah
Living with DM since 2007
Peter
Living with DM since 1992
Join the Community
Join thousands of patients, caregivers, and healthcare professionals and get unlimited access to our growing library.
