Hear From Patients & Care Partners
Hear people living with DM and their care partners share their stories.
Featured Videos
Gabby's complete story
Advice for care partners
Life hacks: slow down
Feeling isolated with DM
Diagnosis & Discovery
Explore stories of how patients first noticed symptoms, navigated misdiagnoses, and ultimately found answers through persistence and expert care.
How an active lifestyle caused her to overlook the early signs of dermatomyositis
Training for a race led to a DM diagnosis after a self-misdiagnosis
Diagnosed with DM as an athlete
Living with Dermatomyositis
Hear how individuals manage everyday life with DM—from career changes and new hobbies to home care and navigating the healthcare system. These stories reveal practical life hacks, emotional resilience, and the creative ways people adapt routines to live fully with DM.
Strength in community for living with DM
Navigating the new normal with daily life
Impact of fatigue on social life
Mental Health & Resilience
Hear raw, heartfelt stories from patients and care partners about the emotional impact of dermatomyositis. Their voices reveal how therapy, creative expression and inner strength help people navigate living with DM.
Mental wellbeing with dermatomyositis
Being resilient and getting back up
Advice to those newly diagnosed
How Dermatomyositis Affects the Body
Understand how DM affects different parts of the body and how symptoms evolve over time.
From drowsiness to rashes and purple eyelids
The initial flare marked by skin involvement and girdle muscle weakness
The itch, scarring and photosensitivity from DM
Advocating for Yourself & Others
Hear how patients and care partners speak up in medical settings, push for accurate diagnoses, and become powerful advocates in the DM community. These stories also highlight the importance of developing partnerships and support networks with physicians, family and friends.
Patient advocacy helps clinicians better recognize and manage DM
The necessity of trusting the patient
Making clinicians aware of DM pain
Complete Patient Stories
Hear extended interviews from people living with dermatomyositis as they walk through their entire story. These detailed accounts reveal the impact of DM on their lives and their resilience battling this disease.
Gabby's complete story
Judi's complete story
Jane's complete story
Care Partners - Supporting Loved Ones with Dermatomyositis
Stories from care partners navigating daily life, treatment, and emotional support for those living with DM.
Khaoula's Story
Philip’s Story
Chris’s Story
Care Partners - Honoring Loved Ones Lost to Dermatomyositis
Powerful reflections from care partners who continue to advocate, educate, and share their journey after loss.
Nori's full story
Who was Nori?
Nori's dermatomyositis journey
PeerConnect
Marilyn
Living with DM since 2007
Benita
Living with DM since 2020
Kaniah
Living with DM since 2007
Peter
Living with DM since 1992
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